Friday, August 08, 2008

CPAP Free!


We finally got to see Miles' bright and shining face free of all tape and tubing! Well, almost. They moved his feeding tube from his mouth to his nose, but he is completely off the CPAP and his breathing and gas levels have been good. I couldn't seem to look at him enough, and Dad went camera happy as you can see. This was a big day for us to finally see Miles' little face completely. Of course we think he's beautiful, and he was awake for a good 20 minutes or so which is the most alert we've ever seen him. Also, when we left last night they were about to take out his UVC, which is the last line that was going to his artery through his umbilical. Yay!!


Unfortunately, not all the news is good. Miles is showing signs of withdrawals from the two sedatives he was on. He has the shakes, he is not showing much interest in sucking (although he will take a paci for a minute or two then spit it out), his breathing rate per minute is higher than they'd like, and he started vomiting yesterday after his feeds. So they have a way of scoring the symptoms of withdrawals and began doing that last night. When I called this morning his scores were a little high. We were told that if they are high they will probably put him on another medication to help him come down off the sedatives slower than just quitting cold turkey. Most of us know someone or have at least seen on TV how uncomfortable and difficult it is for someone who is going through withrawals from medication. While we hate the thought of Miles' going on another med, we also don't want him to suffer coming off the sedative. So of course we will do whatever it takes to make sure he's not in pain.

These pics are my favorite yet! Everyone says he looks like Jeremy. I was holding out at first, but now that I can see his whole face - I guess I'll concede. He's such a little sweetheart! But he does have a set of lungs we found out... :)

6 comments:

AuntKay said...

I am so glad to have a way to keep up with the progress. He is precious. Each day seems better. I am continuing to pray for you all. Love, Aunt Kay

lindsayloo said...

he does look like Jeremy!! what a little sweetheart. We are praying for you guys.

Leah said...

He is super cute! I wish that we could have see you guys in July while we were in TX. Keep putting pics on here so that we can see that sweet face (although he does look a little like Jeremy)
Love,
Neil, Leah and Jack

Mike said...

What a good looking baby!

Grandma (Nita) said...

I am so thankful that God has
been so gracious to us all to
give us Miles without the
expected heart problems.

Lindsay and Jeremy, I know you will be great parents.

Love, Grandma

Jeffrey said...

He looks exactly like Jeremy!