Wednesday, August 20, 2008
We Can See the Light!
So, I know it's been a week since I've given an update. Sigh. Thanks for all the reminders to stay on top of it and for everyone still showing interest in Miles. I definitely had intentions of updating more often, but life has stayed a little hectic lately as you can imagine. I am back at work now until Miles is discharged from Parkland. I just couldn't stand the thought of using my maternity leave without my baby at home, so I asked to go back until that happens. It's definitely made each day a little more exhausting for me, but it's more than worth the weariness to gain that extra time at home with Miles.
He's getting so close! The next couple of days after my last entry were still rough as far as feedings go, but over the weekend it was like the lightbulb came on. He is breastfeeding exceptionally well and taking his bottle without any struggles now. In fact, on Sunday Jeremy was holding him and Miles got one of his little fingers around his feeding tube and just pulled it right out! It was like he was saying, "Here you go guys. I won't be needing that anymore!" His primary nurse decided she wouldn't put the tube back in unless she absolutely had to, and guess what? It's been out ever since!! He's taking full feeds every time with absolutely no problems. Yay! They also moved him to a new room at the end of the hall. It's really a room for chronic babies who have been in the NICU for months, so the room is a lot more quiet and most of the babies are in real cribs and have toys and bouncers to help with their development. At first I was worried that this meant they were anticipating that Miles would be in NICU for a long time, but I was quickly reassured that he was moved because a spot happened to open up and they just thought it would be nicer for him. And it is!! Not nearly as many beeping alarms and whistles going off, and it's a lot more private for us as well.
They continued to wean him off the Methadone slowly over the weekend, and today they discontinued it completely! Dr. Rosenfeld caught me on my lunchtime visit this afternoon and had a big smile on his face and told me that "Miles is doing great!" He said they will monitor him for the next 48 hours to make sure he does fine completely free of the Methadone, and if he does well they will move him to CCN (Continued Care Nursery). This nursery is actually outside the NICU, and is for babies who just need to keep eating and growing. Dr. Rosenfeld said a couple days in there and approval from Miles' cardiologists and he'll be good to go! Praise God! Like we've said before, Dr. Rosenfeld is very conservative. So to see a big smile on his face and to hear him tell me to get Miles' bed ready at home - well it felt like he was telling me we had just won the lottery! But this is so much better! We can't wait to be overwhelmed at home with a new baby to care for.